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We are a group of volunteers who have been personally touched in one way or another by CJD. 


We work alongside the scientists and medics at the MRC Prion Unit to raise funds to help in getting this novel patient treatment up and running.


CJD is a cruel disease and we cannot fight it without your help. We’re fortunate to have some great support already alongside us.

"With your support we believe we can make the first steps towards a treatment for CJD and get closer to making our vision a reality."

 Professor John Collinge MD, FRCP, FRS. MRC Prion Unit, UCL Institute of Neurology.  Honorary Consultant Neurologist at the National Hospital for Neurology and Neurosurgery

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