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For enquiries regarding The Cure CJD Campaign, please email: curecjdcampaign@gmail.com

For medical enquiries, or enquiries related to the disease, please contact The National Prion Clinic: uclh.prion.help@nhs.net

© 2018 The Cure CJD Campaign. A fund within UCLH Charity. Registered Charity No: 1165398

EXPERIENCES OF PRION DISEASES

It gives me comfort that we are now so close to actually treating people...

"There was no hope when my wonderful brother was diagnosed with CJD.  Then we discovered that a promising antibody therapy was in development, but that these antibodies would not be ready for human use in time for us. It was devastating! My brother will always be in my heart.  He is missed so much.  For the future, I pray that other families will not have to face a loss like ours.  It gives me comfort that we are now so close to actually treating people, who develop CJD, with the antibody drug."

Jacqueline, who lost her brother to CJD

If you have an experience of your own that you'd be happy to share, please send us an email.